It’s been a while

I have been meaning to post more. Life kind of got in the way.

Hospital stay #18.

Kayla was in the hospital for 5 days with a port-o-cath infection. She was sent home with heavy duty anti-biotics. She has an appointment to go see her doctor on Wednesday. They are going to take another blood culture. I am praying that it is negative. Her doctor said that if it comes back positive one more time that they are going to remove it.

That freaks me out for a few reasons. 1. She would have to get her arm poked every time they needed to do labs or chemo. 2. What if she gets sick again? How would they keep an IV in her arm for an extended amount of time? Jimmy and I talked it over and we decided that if it comes to that, we will see how she does with the arm poke and if it is just too much for her then we will have them place another port in the other side.

Staying in the hospital is probably one of the only times I am actually calm. I know that she is in the safest place that she can be. It is also extremely boring. You literally sit there in the hospital chair for the whole day. You also sleep in the chair. It’s so super fun to try to sleep in that chair, let alone the room. It’s a given that you will be woken up at least 5 times or more. Machines beeping, nurses checking the toilets and then flushing them, waking her up to take medicine, waking her up to take vitals.

It’s nice to know that at any time there could be a person in the room. I hope I don’t sleep with my mouth open.

That place is just so sad. Bald heads everywhere, parents that look like they are in a daze. Kayla shared a room with a 16 year old girl that had a tumor on her ovary. She was as sweet as pie. She would play candy land with Kayla and bring her lunch over to Kayla’s side so that they could eat together. Even though she was in a lot of pain from her surgery. Best room mate so far.